Catch Up...

Look at H FEEDING herself banana!

Go H!

Dessert time= Banana time!  Lots of potassium= lots of good sleep!

Diva girls swinging... M has her baby doll and H has her raisins.  I tell ya, H is ALWAYS eating... these intestinal parasites are taking a toll on my grocery bill!

The kids and Great Grandma Carol...96 years!

Notice H's face.  Notice how M just had to snuggle up to H.  She is trying to get H to hold her.  

Great Grandma cried when we left and told me how beautiful my children are and how proud of me she is for doing what most people would never do.  She informed me that a lot of people will give me a hard time for having a "well different" family!  She and JR REALLY have a sweet thing for each other!

The best we could do for a kiddo photo at Disneyland.  Oh and BTW, Winnie the Pooh is an obsession in my house.  Yes, I do have "The Many Adventures of Winnie the Pooh" (or "PoohPooh" as it is in my house) memorized, and so does C.  We have a Winnie the Pooh doll and an Eyore doll that are slept with every night... I have to rotate them around 4 kids.

Kissin' Cousins...

My sweet cousin's sweet little girl!  Talk about Ebony and Ivory!  

I have a ton more pics to post but I'll give you a chance to mull over these!

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Well we received the results from H's MRI of the spine and neck.  And, well, she will be scheduled for, YET ANOTHER, MRI as soon as our insurance approves it.  

The results were a bit vague.  I couldn't understand the results so I just assumed everything was  normal because the final sentence said, "conclusively no spinal abnormalities."

Then, we met with the doctor who explained all the jargon.  According to the radiologist, who read the films and wrote the report (but didn't bother, obviously, to read the background on H) found and area that looked like excessive pooling cerebral spinal fluid at the top of the spine. However, he "dismissed it as artifact as the patient was not sedated".  "Artifact" apparently is a technical word meaning either that H moved and caused a blur, or the scan picked up something else under H like an oreo, or clothespin.  Ummmm, I watched them put H to sleep, and not only was she fully sedated, she was braced as well, not to mention the fact that I don't allow her to eat oreos and we don't use clothespins anymore.  So, back to square three and onto the 4th MRI.  I tell you, if they cannot get their act together, H's spine will end up being fried. 

Anyway, the doctor said if in fact the "artifact" is actually pooling CSF, we will need to take action fairly quickly.  Action being figuring out why there is pooling CSF, where it's coming from and if it is shuntable (poetic license).  H's physical behaviors would make more sense if there is pooling CSF pushing up against her nerves and possibly basal ganglia.    So, we'll see. Guess who is calling the doctor EVERYDAY and leaving messages?  Yep, it's me.  

I'll let you know if I find out anything!  Until then, would you please remember us in your prayers.  We are asking the Lord for a conclusive and accurate diagnosis.  We are also asking for complete healing.  Above all, we are asking that the Lord will make Himself most glorified in and through our family and our sweet H.